Tag Archives: acceptance

Masking: A Social Rule

The Masking Rule: A Call for Authenticity in Society

The Unspoken Rule of Masking

In our society, masking has become an unspoken rule that everyone follows to some extent. This behavior, deeply ingrained in our social fabric, is the result of norms established by non-autistic individuals. For autistics, however, this rule feels foreign and uncomfortable. Unlike non-autistics, autistics don’t innately feel the need to hide their true interior because social constructs do not determine their behavior. Instead, they are guided by their personal will, doing as they please and feeling uneasy when forced to pretend and play along with societal expectations.

The Discomfort of Masking for Autistics

Masking, to many autistics, feels like lying. It goes against their nature, as they value honesty and transparency. For example, an autistic person might struggle with the expectation to smile and engage in small talk at a social gathering, finding it disingenuous and exhausting. This tendency to mask is rooted in a societal lack of accountability for personal actions. At the grocery store, at work, and in various social situations, we mask to be liked and included. This inclusion often hinges on conforming to others’ expectations of how we should act and behave, creating a cycle where personal preferences dictate acceptance.

The Societal Debate on Masking

Currently, society is engaged in a debate about the levels and rules of masking. Who should mask? When and where is it appropriate? Why do we do it? These questions arise because there is no universal agreement on the rules of masking. Each individual has their own preferences and expectations, leading to a lack of understanding and acceptance. For instance, at work, some might expect constant politeness and enthusiasm, while others might be more accepting of genuine expressions of frustration or fatigue.

Changing the Rules

But what if we changed the rules? What if we collectively decided that it’s okay to make mistakes, to say the wrong thing, or to have a bad day? What if we accepted that it’s okay to get a bad grade or be late to work? By lowering our expectations of each other and raising our acceptance, we can create a more inclusive society. Imagine a student who fails a test but is supported and encouraged to learn from the experience rather than being shamed. Or a colleague who admits they are having a tough day and is met with understanding rather than criticism.

Encouraging Authenticity

When we peel away the layers of masks accumulated over years, we reveal our truest selves. It’s okay to have many layers—everyone does. Perhaps it’s time for a new rule: unmask and be your true self. Imagine a team-building activity between autistics and non-autistics, where we encourage each other to drop the masks and embrace our genuine selves. By fostering an environment of understanding and acceptance, we can build a society that values authenticity over conformity.

A New Societal Norm

Together, let’s create a world where everyone feels comfortable being who they truly are, without the pressure to mask. Let’s make it okay to show our true interior, to make mistakes, and to be imperfect. Because when we do, we find that the truest version of ourselves is not only acceptable but truly remarkable. By embracing this new norm, we can move towards a society that values each person’s unique qualities and contributions, making it a better place for everyone.

Understanding Boundaries

Embracing Boundaries: A Guide for Autistic and ADHD Individuals

Boundaries are the limits we set to protect our physical, emotional, and mental well-being. They define what we are comfortable with and how we want others to treat us. For autistic and ADHD individuals, setting and maintaining boundaries is crucial. These boundaries help us manage our energy, reduce anxiety, and create a safe space where we can thrive.

Why Boundaries Matter

  1. Self-Preservation: Boundaries help prevent burnout and sensory overload. By recognizing and respecting our limits, we protect ourselves from overwhelming situations.
  2. Respect: Enforcing boundaries teaches others how to treat us with the respect we deserve. It’s a way of saying, “I value myself and my needs.”
  3. Empowerment: Setting boundaries is an act of self-empowerment. It’s a declaration that we are in control of our lives and our choices.

The Value of Firm Boundaries

Our unique impairments are not something to apologize for. In fact, they come with unique abilities and skills that we might not have discovered yet. It took me 30 years to uncover my gifts and abilities. (sytemizing! I know I keep saying it, but it works- reduce anxiety-reduce being overstimulated-then the brain works! Surprise! I was overstimulated for 30 years straight- brain fog, reduced cognitive ability, poor memory and reduced ability to learn- seriously I was a mess)

Discovering Your Value

No one’s opinion of you determines your value as a person. From the moment you were born, you were destined for greatness. Greatness doesn’t always happen overnight. Some of the greatest inventors and creators did so later in life. First, you have to discover the wonders of yourself—all the good with the bad—and accept it as it is.

Acceptance and Growth

Acceptance doesn’t mean resignation; it means seeing the full picture of who you are and using what you’ve got to achieve what you want. Where there is a will, there is a way. Don’t let anyone take away your light or tell you to be anyone but yourself. You are perfect just as you are.

The Power of Community

When I look at the Google Earth project I created, I see that you are one of many. Together, we stand strong. We are a community, each managing our energy and boundaries in our unique ways.

Practical Tips for Setting Boundaries

  1. Know Your Limits: Understand what you can handle physically, emotionally, and mentally. Don’t push beyond these limits.
  2. Communicate Clearly: Be clear and assertive when expressing your boundaries. Use “I” statements, like “I need some quiet time now.”
  3. Practice Saying No: It’s okay to say no. It’s healthy and necessary to preserve your energy and well-being.
  4. Seek Support: Surround yourself with people who respect your boundaries and encourage you to maintain them.
  5. Reflect and Adjust: Regularly reflect on your boundaries and adjust them as needed. Your needs may change over time, and that’s perfectly okay.

Final Thoughts

Remember, you are the manager of yourself. You are the boss. It’s okay to say no, and it’s very healthy to do so. Embrace your boundaries, stand firm in your worth, and shine your light brightly. You are perfect just as you are.

Autism and Suicide

Foreword

One of the main reasons I created this site is to help mothers connect with their autistic children and gain a better understanding of them. The bond between a mother and child is profoundly important, and a mother’s rejection can leave a lifelong wound that never heals. Autism is often misunderstood, leading to unnecessary pain and suffering for those on the spectrum.

The high rates of suicide among autistic individuals is a clear indicator that things need to change.

By fostering understanding and acceptance, we can create a more inclusive and compassionate society. This site is dedicated to supporting that mission, providing resources and insights to help bridge the gap between autistic individuals and their loved ones. Together, we can make a difference and ensure that every autistic person feels valued, understood, and loved.

The Hidden Struggle: Understanding High Suicide Rates Among Autistic Individuals

Autism spectrum disorder (ASD) is a complex and multifaceted condition, characterized by unique cognitive processes, sensory sensitivities, and communication styles. Despite these distinct differences, autistic individuals are often pressured to conform to societal norms that do not accommodate their needs. This relentless demand for compliance can have severe mental health repercussions, contributing to alarmingly high suicide rates within the autistic community.

Personal Insights on Compliance, Acceptance, and Misunderstanding

One of the most pervasive challenges faced by autistic individuals is the constant expectation to comply with neurotypical standards for behavior and communication. For many autistics, the struggle to be accepted and loved hinges on their ability to mask their true selves and conform to the expectations of those around them. This pressure often begins at home, where rejection—whether direct or indirect—can deeply affect an autistic individual’s sense of self-worth.

  • Rejection from Families: The expectation to conform is not limited to external societal pressures; it often starts within the home. Autistic individuals may face direct rejection from family members who do not understand or accept their differences. Indirect rejection can also occur when families, despite well-meaning intentions, encourage behaviors and interests that align with neurotypical norms, inadvertently invalidating the autistic person’s true self. This lack of acceptance and understanding within one’s own family can be profoundly isolating and damaging.
  • Misinterpretation of Actions: One of the most significant challenges autistic individuals face is the misinterpretation of their actions. Because autistics process social interactions differently, their behaviors are often perceived by non-autistics as having social malintent. Neurotypical individuals, anchored by their social constructs, may view autistic actions as deliberately provocative or antisocial. This couldn’t be further from the truth. Autistic individuals do not act with malintent; they are not trying to make people angry or to appear superior. The cognitive load of compensating for social impairments is immense, leaving no capacity for such strategic behavior.

The Truth About Autistic Behavior

Autistic individuals are genuine in their actions and words. They express what they feel and see without manipulation or hidden motives. However, non-autistics often project their own social complexities onto autistics, assuming similar layers of social maneuvering. This projection results in unfair judgments and further isolation for autistic individuals, who are simply trying to navigate a world that feels inherently dissonant to them.

Additional Challenges and Compliance

  • Suppressing Special Interests: Autistic individuals often have deep, passionate interests that provide them with immense joy and fulfillment. However, they are frequently told to talk about something else, to give others a chance to speak, or to engage in activities that they do not enjoy. This suppression of their true interests and passions can lead to a sense of isolation and invisibility.
  • Behavioral Expectations: The pressure to behave in a way that is deemed acceptable by neurotypical standards can be overwhelming. From childhood through adulthood, many autistics are taught to hide their natural behaviors, to refrain from stimming, and to conform to social norms that do not accommodate their sensory and cognitive needs.
  • Masking Autism: Masking, or camouflaging autistic traits to fit in, is a common coping mechanism. However, it comes at a significant cost. Constantly pretending to be someone you are not is exhausting and can lead to severe mental health issues, including depression and anxiety. The feeling of being unlovable and unacceptable in one’s true form is a profound and painful experience that many autistic individuals endure daily.

Statistical Evidence and External Research

The statistics on suicide rates among autistic individuals are stark and alarming. Studies have shown that autistic people are significantly more likely to experience suicidal thoughts and behaviors compared to the general population. According to research published in the journal Autism Research, the rate of suicide attempts among autistic adults is nearly four times higher than that of the general population (Cassidy et al., 2014).

Additional Factors Contributing to High Suicide Rates

Several other factors contribute to the high suicide rates among autistic individuals:

  • Invisible Disability Bias: Autism is often an invisible disability, meaning that autistic individuals can look and act like everyone else, making their struggles less apparent. This invisibility can lead to a lack of understanding and empathy from others, exacerbating feelings of isolation and despair.
  • Sensory Overload: The modern world is filled with sensory stimuli that can be overwhelming for autistic individuals. Environments such as crowded grocery stores, noisy workplaces, and bustling public spaces can lead to chronic sensory overload, contributing to heightened stress and mental fatigue.
  • Communication Barriers: Autistic individuals often struggle with understanding implied language and non-verbal cues. This communication barrier can lead to misunderstandings, social rejection, and feelings of inadequacy. The inability to express oneself fully and be understood by others can deepen the sense of isolation.
  • Lack of Adequate Support: Many autistic individuals do not receive the support they need to navigate daily life. Existing accommodations are often insufficient, focusing on minimal adjustments rather than creating environments that truly support neurodiverse needs.

Conclusion

The high suicide rates among autistic individuals are a stark reminder of the need for greater understanding, acceptance, and support. Society must move beyond token gestures and weak accommodations to embrace true inclusivity. This involves recognizing and valuing the unique ways in which autistic individuals think, communicate, and experience the world. By fostering environments that support neurodiverse needs and by embracing autistic individuals as they are, we can help reduce the mental health burden and create a more inclusive and compassionate society.

Autism Community Divided

Unpacking How ‘Asperger’s’ Contributes to Division in the Autism Community

  • Is Asperger syndrome a severe form of autism spectrum disorder?
  • How does Asperger’s compare to autism intelligence?
  • What is life like for someone with Asperger’s?

Above are the typical questions Autistics and families of Autistics get asked often. Words matter. They can be inclusive or divisive. Because we can never know how an individual feels about a word or events surrounding a word, its always best to ask or use formal terminology. If you can’t remember either choice, silence is always an option.

The use of the term “Asperger’s” within the autistic community and broader discussions about autism spectrum disorder (ASD) has become a topic of debate and sensitivity for several reasons, leading some to avoid its use in favour of more inclusive or neutral terminology. Here are the key reasons why the term “Asperger’s” can perpetuate negative bias and why it may be viewed unfavourably by some within the autistic community:

  1. Association with Hans Asperger: The term “Asperger’s syndrome” originates from Hans Asperger, an Austrian pediatrician who, during World War II, identified a group of children with distinct psychological characteristics. Recent historical research has revealed that Asperger cooperated with the Nazi regime’s eugenics policies, including the forced sterilization and euthanasia of disabled individuals. This association with Nazi eugenics has led to a reevaluation of his legacy and a push to distance the autistic community from his name.
  2. Pathologizing Language: The term “Asperger’s syndrome” is sometimes criticized for pathologizing individuals, implying a disease or disorder that needs to be cured or fixed. Many within the autistic community prefer identity-first language (e.g., “autistic person” rather than “person with autism”) and view autism as a difference rather than a disorder. The specific label of “Asperger’s” can be seen as reinforcing a medical model of disability rather than a social model that focuses on societal barriers and acceptance.
  3. False Perception of Homogeneity: Using specific labels like “Asperger’s” can contribute to stereotypes about what autism looks like, potentially overshadowing the diversity within the autistic community. It may reinforce a narrow view of autism as being associated only with those who are verbal or have certain intellectual or academic abilities, ignoring the wide range of experiences and needs within the community.
  4. Hierarchy within the Autism Spectrum: The term “Asperger’s” has been used in the past to denote a “milder” form of autism, sometimes leading to a perceived hierarchy within the autism spectrum. This can invalidate the experiences and challenges faced by those who don’t fit this narrow definition, and it can perpetuate the idea that some autistic experiences are more “acceptable” or “normal” than others.
  5. Diagnostic Criteria Changes: The diagnostic criteria for autism spectrum disorders have evolved. The DSM-5 (Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition), published by the American Psychiatric Association in 2013, removed Asperger’s syndrome as a separate diagnosis and merged it into the broader category of autism spectrum disorder (ASD). This change reflects a move towards understanding autism as a spectrum with varying degrees of support needs rather than as distinct subtypes. This shift in diagnostic criteria has also influenced the language professionals and advocates use.
  6. Self-Identification and Community Preferences: Some individuals diagnosed with Asperger’s syndrome before the diagnostic criteria change may still identify with the term, and it’s important to respect personal identification choices. However, the broader movement towards more inclusive and less stigmatizing language reflects a community preference towards unity and recognition of diversity within the spectrum.

In conclusion, the debate surrounding the use of the term “Asperger’s” within the autistic community and discussions about autism spectrum disorder underscores the importance of language and its impact on inclusion and perception. The term’s association with Hans Asperger, pathologizing language, false perception of homogeneity, perceived hierarchy within the autism spectrum, changes in diagnostic criteria, and community preferences all contribute to the complexity of this issue.

Moving forward, it’s crucial to prioritize respectful and inclusive language that reflects the diversity and lived experiences of individuals on the autism spectrum. This includes using identity-first language when appropriate and recognizing that autism is a spectrum with a wide range of strengths, challenges, and support needs. By fostering a sense of unity and understanding within the community, we can work towards creating a more accepting and supportive environment for all individuals on the autism spectrum.

Autistic Stereotypes and Bias

Dispelling Myths and Embracing Diversity: A Comprehensive Guide to Understanding Autism Spectrum Disorder

Autism Spectrum Disorder (ASD) encompasses a range of neurodevelopmental conditions marked by diverse symptoms and abilities. Despite growing awareness, pervasive stereotypes and stigmas about autism continue to exist, often overshadowing the nuanced realities of those living with the condition. This blog post aims to debunk common myths about autism, outline effective strategies for changing stereotypes, and highlight the critical issues stemming from the stigma associated with ASD.

Debunking Common Autism Myths

  1. Myth: All Autistic People Have the Same Symptoms
    • Reality: Autism manifests uniquely across individuals. The spectrum includes a wide array of challenges and strengths, making it misleading to assume uniformity in symptoms or experiences.
  2. Myth: Autistic People Lack Empathy
    • Reality: While some autistic individuals may have difficulty expressing empathy in conventional ways, many experience intense empathetic feelings. The challenge often lies in communication, not the capacity for empathy itself.
  3. Myth: Autistic People Are Either Savants or Intellectually Disabled
    • Reality: The autistic population, like any other, exhibits a broad range of intellectual abilities. While some individuals display exceptional talents or face significant intellectual challenges, most possess a varied set of skills and competencies.
  4. Myth: Autistic People Do Not Want Social Relationships
    • Reality: Many autistic individuals deeply value social connections but may struggle with traditional social norms. Their approach to relationships can vary significantly, often requiring tailored communication strategies.
  5. Myth: Autistic People Cannot Lead Independent Lives
    • Reality: With appropriate supports and accommodations, many autistic individuals lead successful, independent lives, contributing uniquely to their communities and workplaces.

Strategies for Changing Stereotypes

  • Education and Awareness: Programs designed to educate the public about the realities of autism are crucial. They should highlight the diversity within the autism spectrum and promote a more nuanced understanding of the condition.
  • Diverse Representation: Media and public discourse should strive for realistic portrayals of autistic individuals, showcasing a variety of experiences and stories to reflect the true diversity of the community.
  • Self-Advocacy: Empowering autistic individuals to share their own stories and perspectives can challenge misconceptions directly and provide a more personal understanding of the spectrum.
  • Inclusive Practices: Schools, workplaces, and community spaces should implement inclusive practices that respect and accommodate the unique needs of autistic individuals, fostering a supportive environment.
  • Collaboration: Partnerships between autism advocacy organizations, educators, healthcare providers, and policymakers can drive systemic changes that enhance understanding and acceptance of autism.

The Impact of Stigma on Autistic Individuals

  • Social Isolation: Misunderstandings about autism can lead to social isolation for both individuals and their families, limiting their engagement with community and support networks.
  • Barriers to Services: Stigma may prevent individuals from seeking diagnosis or services, reducing access to crucial support that could enhance the quality of life and independence.
  • Mental Health Challenges: The stigma associated with autism often contributes to mental health issues among autistic individuals, including anxiety, depression, and diminished self-esteem.
  • Educational and Professional Obstacles: Stereotypes can lead to discrimination or inadequate support in academic and professional settings, hindering the personal and economic independence of autistic individuals.

Conclusion

Understanding autism requires a commitment to recognizing and respecting the individual variations within the spectrum. By dispelling myths, advocating for diverse representations, and implementing inclusive practices, society can move towards a more accurate and compassionate understanding of autism. This shift not only benefits autistic individuals by enhancing their quality of life and opportunities but also enriches the broader community by embracing a diversity of perspectives and experiences.