Tag Archives: communication challenges

Autism

Social Genocide

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Beyond Bias: The Systematic Disregard of Autistic Individuals and Its Dire Consequences

Autistic individuals often face systemic discrimination and mistreatment, far beyond mere bias. This mistreatment spans various aspects of society, from law enforcement and legal systems to education and everyday interactions. Such pervasive disregard not only undermines the dignity and rights of autistic people but also poses severe consequences for their safety and well-being. This article explores the widespread mistreatment of autistic individuals, the roots of this issue, and the urgent need for societal change.

Irregular Connectivity and Communication Challenges

Autistic individuals have irregular neural connectivity, leading to difficulties in processing information, especially when it is ambiguous or implied. The world communicates not only verbally but also through written and non-verbal cues that can be unclear and confusing for autistic individuals. This irregular connectivity can result in missed steps, confusion, fear, and anger. When society expects autistic individuals to navigate this ambiguous communication effortlessly, it unfairly places the blame on them when they struggle.

The Reality of Systemic Disregard

Law Enforcement

  • Fear of the Unknowns: For autistic individuals, the fear of unknowns can be overwhelming. When faced with high-stress situations, such as interactions with law enforcement, this fear is magnified. Autistic people may struggle to understand and respond to rapidly shouted instructions, leading to dangerous misunderstandings.
  • Example: In high-pressure scenarios, such as a police officer demanding compliance with shouted commands, an autistic individual may not be able to process the instructions quickly enough. This can lead to perceived non-compliance or resistance.
  • Consequence: Such misunderstandings can result in unnecessary use of force, injuries, or even fatalities. In police interview rooms, the inability to understand the nuanced questioning can lead to false confessions or the dismissal of genuine concerns.

Legal Systems

  • Communication Barriers: Autistic individuals often face significant communication challenges, which are frequently misunderstood by legal professionals. This misunderstanding can lead to a lack of proper legal representation and support.
  • Example: An autistic person seeking legal help may struggle with traditional communication methods, resulting in their concerns being ignored or misunderstood by lawyers.
  • Consequence: This can lead to unjust legal outcomes, prolonged distress, and a

lack of recourse for autistic individuals facing legal issues.

Healthcare and Services

  • Sensory Sensitivities: Autistic individuals often have heightened sensory sensitivities, which can make everyday tasks and interactions challenging. When these sensitivities are not understood or accommodated, it leads to significant distress and neglect.
  • Example: In healthcare or service settings, an autistic person may need specific accommodations for sensory sensitivities. Without understanding and support, their needs are often dismissed, leading to inadequate care.
  • Consequence: This neglect can result in deteriorating health and well-being, as well as a lack of trust in essential services.

Education

  • Implied Instructions: Autistic students often struggle with implied instructions and expectations, leading to misunderstandings and unfair academic penalties. Educators may not recognize the need for explicit, clear instructions.
  • Example: Autistic students may answer questions in a way that reflects their unique thinking patterns, which can be misinterpreted by teachers.
  • Consequence: This results in lower grades, academic failure, and a lack of opportunities for further education and career development.

The Role of Early Intervention and ABA

Early intervention programs and Applied Behavior Analysis (ABA) have been widely promoted with the intention of helping autistic individuals. However, these programs often contribute to the problem by perpetuating harmful biases and teaching autistic individuals that their natural behaviors are wrong.

  • Misguided Intentions: While early intervention aimed to support autistic children, it often focuses on making them conform to non-autistic norms, leading to internalized shame and a lack of self-acceptance.
  • Harmful Messaging: Early intervention campaigns have driven home the message that autism is a tragedy, something to be feared and mourned. Media portrayals often show families devastated by an autism diagnosis, reinforcing the idea that autism is inherently negative.
  • Corporate Endorsement: Large corporations have supported and perpetuated these narratives, spreading the message that autism is something to be feared and urgently addressed. This has led to a widespread societal belief that autistic individuals are fundamentally flawed or broken.
  • Consequence: These approaches can lead to long-term psychological harm, making it harder for autistic individuals to advocate for themselves and navigate societal systems. The narrative that autistic kids are problematic and do “weird” things contributes to stigma and exclusion.

The Urgent Need for Change

The systematic disregard of autistic individuals is not just a matter of bias; it is a violation of human rights. If autistic people cannot rely on essential services like law enforcement, legal aid, education, and healthcare, their safety and well-being are in jeopardy. This widespread mistreatment must be addressed to prevent further harm and ensure that autistic individuals can live with dignity and respect.

Social Genocide Through Systemic Discrimination

Social genocide, or sociocide, involves the systematic destruction of a group’s social structures, identity, and way of life through systemic discrimination. For the autistic community, this form of genocide manifests in the pervasive efforts to “cure” or eliminate autism rather than understanding and supporting autistic individuals. Autistic people, though not a race, represent a unique neurotype within the human species. Society often focuses on the comorbidities and perceived quality-of-life issues associated with autism, driving research and interventions aimed at eradicating autism rather than improving the lives of autistic individuals. This approach denies autistic people the opportunity to live fulfilling lives and to be accepted as they are. It is hypocritical that in an age of cancel culture, which claims to advocate for justice and equality, society simultaneously contributes to the social genocide of the autistic community by promoting stereotypes, exclusion, and harmful “cures.” This contradiction underscores the urgent need to shift the focus from elimination to acceptance and support, recognizing autistic individuals as valuable members of society who deserve to thrive.

Conclusion

Autistic individuals are valuable members of society who contribute in many ways, yet they face systemic mistreatment that undermines their humanity. It is crucial to recognize and address this issue, demanding change from all societal sectors. By raising awareness and advocating for autistic rights, we can work towards a society where autistic individuals are treated with the respect and understanding they deserve. The future of autistic children depends on our commitment to this change.

Autism

Autism DIY

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Importance of Autistic Individuals to Attempt Tasks Independently

Understanding the Unique Cognitive Load in Autism

Autistic individuals often develop and learn at a slower pace compared to neurotypical individuals. This isn’t due to a lack of ability, but rather because we have twice the cognitive work to do. We process the same information as neurotypical individuals, but we also have to sort through an abundance of extra data simultaneously. Imagine trying to complete an 80 MB download on a slow internet connection, while others only have to handle a 10 MB download on a high-speed connection. This analogy captures the essence of our cognitive processing challenges.

The Double Cognitive Load

Anyone would become irritable or fussy if they were expected to perform tasks at the same rate as others while doing twice the amount of work. This expectation doesn’t consider the slower processing speed necessitated by our need to sift through more information. It’s crucial to understand that our brains are wired differently, rerouting connections for efficiency, but this still leaves us with an extensive amount of extra data to manage. The slower internet connection in our analogy represents these additional short connections that, while rerouted for efficiency, still demand more processing power.

The Complexity of Instructions

Neurotypical instructions often utilize top-down processing and contain extra words with varying visual meanings. For us, this means we have to decode these words, find the corresponding visual images in our heads, and then make sense of them. Verbal language frequently falls short in conveying the precise images and concepts in our minds. This translation from visual pictures to words and sentences involves significant brain work, leading to quicker fatigue.

The Value of Autonomy

Given these challenges, it’s often easier and more effective to let autistic individuals figure things out on their own, provided it’s safe to do so. This autonomy allows us to approach tasks in a way that aligns with our unique cognitive processes, reducing the frustration and cognitive overload caused by trying to follow instructions that don’t cater to our needs.

Computer Analogies in Autism

Think of our brains as computers. Neurotypical individuals might handle tasks with a 10 MB download on a high-speed connection, while we manage an 80 MB download on a much slower connection. The additional data we process is akin to sorting through an extra large dataset, which inherently takes more time and resources. Our brains have many short connections, similar to a network that’s constantly rerouting for efficiency. This network still has to handle the vast extra data, slowing down the overall processing speed.

When given verbal instructions, we translate these into visual pictures in our minds. This is like converting a text-based command into a detailed visual interface, which is an additional layer of complexity and work. It’s not that we can’t do it; it’s just that it requires more time and energy. (Tasks of this nature cause intense rage deep within my soul)

Conclusion

Understanding the cognitive load and processing challenges faced by autistic individuals is crucial. Allowing us the space and time to figure things out independently, when safe, acknowledges our unique needs and strengths. It’s essential to adapt communication and instructional methods to be more explicit and less reliant on implied steps, reducing the cognitive burden and supporting more efficient learning and task completion.

By appreciating the complexities of our cognitive processes and providing the necessary accommodations, we can foster an environment that respects and harnesses our abilities, ultimately leading to better outcomes and well-being.

The Importance of Routines and Self-Care

Understanding the cognitive load and processing challenges faced by autistic individuals highlights the importance of having routines and reducing overstimulation. Routines provide a predictable structure that can help mitigate the overwhelming nature of processing excessive sensory information and implied steps in communication.

Engaging in self-care is crucial because it allows autistic individuals to manage their sensory inputs and cognitive load effectively. By maintaining routines and prioritizing self-care, we can create an environment that reduces stress and cognitive overload, enabling us to function more efficiently and comfortably.

This article underscores why it is so essential for autistic individuals to have established routines and to take steps to reduce overstimulation. We already have a lot to process and manage; adding unnecessary complexity only exacerbates our challenges. By being mindful of these needs, we can improve our well-being and overall quality of life.

Autism

Procedural Memory

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Understanding Procedural Memory and Its Dance with Autism

Procedural Memory and Implicit Memory

Procedural memory is a type of long-term memory responsible for knowing how to perform tasks. This memory system allows us to carry out activities without conscious thought once they become automatic through repetition. Procedural memory falls under the category of implicit memory, which refers to unconscious memories that influence our behaviors and skills. Examples of procedural memory include riding a bike, typing on a keyboard, and following scripts in customer service roles.

Key Studies on Procedural Memory and Autism

Research has explored the role of procedural memory in autism, revealing some complexities. For instance, the Procedural Deficit Hypothesis (PDH) suggests that procedural memory deficits might contribute to the language and cognitive difficulties observed in autism and other neurodevelopmental disorders. However, studies show mixed results on whether the structural differences in brain regions involved in procedural memory significantly differ between autistic individuals and neurotypical individuals.

One key finding is that while autistic individuals may take longer to learn procedural tasks, once learned, these tasks can become just as automatic as in neurotypical individuals. This suggests that procedural memory, once established, functions effectively in autistic individuals, even though the initial learning process might be more challenging due to other cognitive factors.

Communication and Cognitive Challenges

One significant challenge for autistic individuals is understanding instructions that contain implied steps. Non-autistic communication often assumes shared understanding and omits certain steps, expecting individuals to infer them. This can lead to confusion and frustration for autistic individuals who interpret information more literally and need explicit details to understand and follow instructions accurately.

The irregular connectivity in the autistic brain means that the implied steps are not inherently known, and much effort is needed to figure them out. Every encounter with such instructions requires additional cognitive processing to decode the missing information. This issue is prevalent because most instructional materials and communications are designed with neurotypical assumptions, leaving autistic individuals to fill in the gaps on their own.

Cognitive Load Theory

Cognitive Load Theory explains that our working memory has limited capacity, and when it is overloaded, our ability to process information and perform tasks diminishes. For autistic individuals, the need to infer missing steps from instructions significantly increases cognitive load. This extra processing required to understand what neurotypical individuals might assume is evident can be exhausting and hinder efficient learning.

Despite these challenges, autistic individuals often develop excellent procedural memory once they have figured out all the steps, even those that were not communicated. This ability to automate tasks can be seen as a strength, allowing for high proficiency in activities that have been thoroughly learned and practiced.

I will add, that once a procedure is learned, I then work on perfecting it to maximum efficiency and hundred percent accuracy. I do not like to waste time. I was top performer at my sales/customer service card services employment for a few years. It took me a year and a really good manager who clearly communicated not only her expectations , but the steps required to achieve it in detail for me. I am a very loyal employee. I will work, sick, tired, dead, you name it if I am treated right and she did. A very kind woman. Then when the mortgage crises occurred I had to learn underwriting, and I perfected that as well. The worlds instructions are terrible and non autistics speak very ambiguously in general. You can do the math.

Conclusion

Understanding the nuances of procedural memory and implicit learning in autism helps highlight the importance of clear, detailed communication. By recognizing the need for explicit instructions and reducing the reliance on implied steps, we can better support autistic individuals in learning and performing tasks efficiently. Moreover, acknowledging the extra cognitive load faced by autistic individuals underscores the need for accommodations that facilitate smoother and more effective learning processes.

I actually stopped reading instructions because non-autistics makes things so confusing with their top down processing, so their instructions and manuals reflect that. Ikea’s instructions I can understand just find, however I still make a game of it and see how far I can go before I fuck something up. I always do something wrong and I always get mad at myself about it every time. I perform a lot of experiments at home just for my personal pleasure of data collecting.

and one more thing-

How can these studies be accurate if y’all can communicate clearly enough for us to understand? Hellooooooo…McFly….. I really hope you all are starting to see how ridiculous it is that people look at us strangely- are sure we are the problem? I don’t think so…… I think non-autistics are projecting….. ***Insert eye roll here**

Editorial

The Spoken Word

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The Complexity of Thought

For an autistic individual, thoughts can be multidimensional, co-occurring like floors in a building, each with its unique pattern and pace. When multiple “floors” are active, the mental process becomes incredibly complex, akin to an intricate dance of ideas, each moving to its rhythm. This rich internal landscape often involves dissecting concepts to find underlying patterns or connections at speeds that outpace the regular flow of conversation. The intensity and speed at which these thoughts develop can make slowing down to communicate verbally a strenuous, sometimes unfeasible task.

Moreover, the precision of language often falls short. Words can seem too rigid or blunt to encapsulate the full spectrum of an autistic person’s feelings or observations. Emotions might be felt physically; thoughts often manifest as pictures rather than words. In such instances, traditional language isn’t just inadequate—it feels cumbersome, an unnecessary filter imposed by a world that operates differently.

The Disconnection from Social Dependencies

Unlike non-autistic thinking, which relies heavily on social cues and shared environmental contexts, autistic thinking can be deeply introspective and original, not necessarily hinged on the social fabric. This independence from social constructs can make autistic thoughts seem alien to non-autistic individuals. For example, where a non-autistic person might enjoy a forest scene, an autistic individual might experience it on multiple sensory levels simultaneously, appreciating nuances and stimuli that are invisible to others.

The Unspoken Beauty of the World

Sometimes, the beauty and depth perceived by an autistic individual are too profound for words. The unfiltered sensory input from nature can be overwhelmingly beautiful, perceived with an intensity that words cannot convey. The magic of experiencing the world without sensory filters is a unique aspect of autism that many non-autistics may find challenging to conceptualize.

The Burden of Misunderstanding

A significant barrier to communication for many individuals with autism is the frequent misunderstanding of their thoughts and intentions. When asked, “What are you thinking?” translating complex, multi-layered visual and sensory thoughts into language is daunting enough. However, the challenge is compounded exponentially by non-autistic individuals’ misinterpreting these communications. Often, what is communicated is not what is heard, leading to a gross misrepresentation of the original thought or feeling.

This frequent misunderstanding can be intensely frustrating. Autistic individuals typically do not engage in the subtleties of social communication that non-autistics might—there are no hidden agendas, no malice, or subtle insinuations in their words. Like many others on the spectrum, my brain does not work quickly enough with language to weave complex social games or implications. Every misinterpretation or assumption others make about supposed subtexts or unspoken messages that do not exist only adds to the frustration.

Such experiences can be highly agitating, leading to a preference for silence rather than risking further misunderstanding. This frustration is not unique to me but is a common sentiment among many non-verbal or minimally verbal autistic individuals. The continual misinterpretation and the effort to correct it can be exhausting, diminishing the desire to interact.

Understanding this can help bridge the communication gap: recognizing that the autistic way of processing and expressing thoughts is different—not deficient—can lead to more effective and respectful communication. It is crucial for non-autistics to listen more carefully and to resist the urge to read between the lines where there is nothing to be read. Patience and a genuine effort to understand can transform these interactions, making them less stressful and more rewarding for autistic individuals struggling to share their unique perspectives.